Steve Hugunin's Fundraiser

  • 16

    Supporters

  • $1,061

    Raised

  • 0

    Days Left

A Fundraiser To Benefit Niemann-Pick Children's Fund

And the winning dare is...

Shave his head

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Fundraiser Activity

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    Brian Stephens

    donated $300 for Shave his head

    almost 3 years ago

  • Defaultavatar

    Brian Stephens

    donated $200 for Shave his head

    almost 3 years ago

  • Defaultavatar

    Brian Stephens

    donated $100 for Shave his head

    almost 3 years ago

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    Kelly Minihan

    donated $25 for Shave his headNo more spike!!!

    almost 3 years ago

  • Defaultavatar

    Kelly Minihan

    donated $25 for Shave his headNo more spike!!!

    almost 3 years ago

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    Michael Perkins

    donated $30 for Steve, should wear a DealBug costume for a week. Must wear tights and paint face purple!I know this isn't enough to win but I am happy to help!

    almost 3 years ago

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    Eugene Hugunin

    donated $30 for Not shave for a monthYou are a great person! Very proud of you! Love, Dad

    almost 3 years ago

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    darlyne wyatt

    donated $50 for Not shave for a monthMay God B less you

    almost 3 years ago

  • Defaultavatar

    Charles Woolverton

    donated $100 for Shave his head

    almost 3 years ago

  • Defaultavatar

    Anonymous

    donated $50 for Not shave for a month

    almost 3 years ago

  • Defaultavatar

    Sherrie Hugunin

    donated $75 for Not shave for a month

    almost 3 years ago

  • Defaultavatar

    Sherrie Hugunin

    donated $75 for Not shave for a month

    almost 3 years ago

  • Defaultavatar

    Robin Gearheart

    donated $50 for Steve, should wear a DealBug costume for a week. Must wear tights and paint face purple!

    almost 3 years ago

  • Defaultavatar

    Matthew Kirk

    donated $150 for Shave his head

    almost 3 years ago

  • Defaultavatar

    Jessica Mitchell

    donated $51 for Wear a kilt for a month

    almost 3 years ago

  • Defaultavatar

    Sherrie Hugunin

    donated $50 for Not shave for a monthI'm very proud of you for doing this. It shows that what great compassion you have for other!

    almost 3 years ago

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    Steve Hugunin

    launched the fundraiser!

    almost 3 years ago

Steve's Updates

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  • Your phone rings, the doctor says 'I'm sorry to tell you this' and then your life changes forever.

    In August 2008, Mike and Jennifer Stults lives did change when their two sons Brison age 5, and Parker age 4, were diagnosed with Niemann Pick Type C. A rare and fatal disease.

    I have had the privileged of calling Mike Stults my friend for a few years now. I want to raise money to help fund research that will find a treatment and cure for this disease.

    Niemann-Pick Type C Disease simply put is FATAL. It is a genetic, neurodegenerative disorder that consequently accumulates large amounts of cholesterol and other excess fats in the cells of the liver, spleen, and brain causing progressive deterioration of the nervous system. It usually starts to affect children of school age (4-7 years old) by interfering with their ability to metabolize cholesterol.

    The average age of diagnosis for NPC1 disease was 10.4 years, with one-half of patients being diagnosed before the age of 6.9 years. The average age of death for NPC1 disease was 16.2 years, with one-half of patients dying before the age of 12.5 years.

    THIS IS WHY THIS RARE DISEASE NEEDS OUR HELP!

    Please feel free to add anything to the dares!

    almost 3 years ago

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